SCRF Gala: Pictures and Stories of Sanfilippo Families are Needed!
Elisabeth Linton's family set up the Sanfilippo Children's Research Foundation (SCRF) 12 years ago when their now almost 17 year old daughter Elisa was diagnosed at age 4. Each year the gala raises several hundred thousand dollars to fund research, most recently that of Dr. Fu from Ohio and Dr. Biggar out of Manchester.
This year's theme is "Cooking up a Cure", and they are using the theme to showcase the amazing medical strides that have been made in recent years. There will be about 600 attendees, and Elisabeth has asked Sarah Hamza to reach out to our families and inquire if we would be willing to share some photos of our kids, as well as any relevant details of our journey.
The specific request is for photos from as many Sanfilippo families as possible, so that supporters of the condition can come to know some of the faces of the children their fundraising dollars will support. It would be great if you could share photos asan infant, at or near diagnosis, and now. Smiling happy photos that show the joy of life we all have learned to cling to, in spite of the heartache.
If you are interested, please send an email with your story and photos to: