Team Sanfilippo: May 2011

Team Sanfilippo

Pages

Home
Sanfilippo Research
MPS Societies/Friends

Monday, May 30, 2011

I moved my blog

Hey everyone!

I have moved my blog. You can now find us at:

http://www.rallyforreed.com

Posted by Roy Zeighami at 7:56 PM No comments:

Email This BlogThis!Share to X Share to Facebook Share to Pinterest

Newer Posts Older Posts Home

Subscribe to: Posts (Atom)

Team Sanfilippo Links

Official Team Sanfilippo Web Site
Good Search
Team Sanfilippo Youtube Page
Team Sanfilippo Ebay Store

Popular Posts

A Father's Perspective on His Very Sick Kid

This blog entry is for my fellow fathers, those that have had to suffer the pain of hearing that one or more of their beloved children...
What is the point of this blog?

About Me My name is Roy Zeighami. My son Reed, born in 2007, was recently diagnosed with MPS III or Sanfilippo Syndrome. It is a rare g...
SCRF Gala: Pictures and Stories of Sanfilippo Families are Needed!

Elisabeth Linton's family set up the Sanfilippo Children's Research Foundation (SCRF) 12 years ago when their now almost 17 year ol...
The Sad Truth About the US Rare Disease Drug Approval Process

Before I get into the meat of my blog post, I would like to start by saying that I am in no position to endorse any treatment. I put more...
The Good Search Challenge

Everyone loves a good challenge, especially when it is for a good cause. We need your help to beat Sanfilippo Syndrome , a devastating chil...
Good Searching for a cure

In fund raising, every dollar counts. To find the cure for our children we need every bit of help we can get. We need to ask, "What c...
Problems and the Law of Expandablity

Problems will expand to fill all the space we give them. No matter how bad things get, we have to contain them. It can be easy to look at...
Ebay Giving Works: Clear your clutter, cure some kids, save on taxes

Okay, let's admit it. We all have a ton of junk in our house that is just taking up space. Instead of just letting that junk clutter o...
Measuring Up As a Father

Pop culture has done the male psyche a great disservice. If you watch a modern sitcom, the dads are almost always portrayed as bumbling idi...
Reed and the Burning Bush

It is with a new perspective that I read the story from the Bible in Genesis 22. This scripture tells the story of how God asked Abraham to...

Blog Archive

▼ 2011 (16)
- ▼ May (1)
  - I moved my blog
- ► April (2)
- ► March (6)
- ► February (7)

Cure the Process

Read the Team Sanfilippo Open Letter of Support for Dr. Kakkis' Cure the Process Campaign

Donate to Team Sanfilippo

About the Author

Roy Zeighami: Dallas, Texas, United States; Roy Zeighami lives in Dallas, TX with his Wife and two kids. His son Reed, born in 2007, has been diagnosed with MPS IIIA. He can be reached at roy.zeighami@gmail.com

View my complete profile

Followers

Subscribe To

Posts

Posts

All Comments

All Comments

Pageviews past week

Simple theme. Theme images by gaffera. Powered by Blogger.